Frequently Asked Questions

Please note that not all resources listed here may be available in your local language. 

For additional information and resources for caregivers, visit:  

Caregiver Action Network

To learn more about clinical trials in children, visit: 

HealthyChildren.org

Public Clinical Trial Registries: 

U.S. NIH National Library of Medicine (Clinicaltrials.gov)

EU Clinical Trials Register

EU Clinical Trials

China Drug Trials

Japanese Registry of Clinical Trials

For additional information about clinical trials on other public websites, visit: 

U.S. NIH National Cancer Institute

U.S. FDA Center for Drug Evaluation and Research (CDER)

Japanese Ministry of Health, Labour and Welfare

NIH Clinical Research Trials and You

BIO Clinical Trials: The Power of Participation

For additional information for patients with certain conditions: 

American Cancer Society

National Organization for Rare Disorders (NORD)

American Academy of Ophthalmology: Eye Health Organizations